Is it Endometriosis or IBS?

Is it Endometriosis or IBS?
sinervoefaOften, painful and distressing GI symptoms are dismissed and referred to as “IBS.” In fact, endometriosis may be responsible.  Hear what CEC’s Medical Director and expert endometriosis surgeon, Dr. Ken Sinervo, has to say in his backstage interview at the EFA annual endometriosis symposium at Lenox Hill Hospital in NYC in March 2013.  We will bring you his full keynote lecture from that day as soon as the footage becomes available. Dr. Sinervo’s commentary begins at 1:43:

http://www.youtube.com/watch?v=LocXaxKa4x0

Nezhat Family Foundation to Host Endometriosis “Million Woman March”

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The Nezhat Family Foundation is planning the first Million Woman March for Endometriosis on March 13, 2014, in Washington, D.C.,
London, Berlin, and Beyond. 
Get involved and learn more here:

http://nezhat.org/endometriosis/million-woman-march-for-endometriosis.php

 

CEC Celebrates 2013 Women’s Health Week

National Women’s Health Week 2013

 


NATIONAL WOMEN’S HEALTH WEEK 2013

The CEC is delighted to remain an annual supporter of this important endeavor each year. Learn more at http://www.redorbit.com/news/health/1112845609/national-womens-health-week-2013-051413/.

Here are some ways you can get involved in or benefit from the 2013 events:

Free Endometriosis Evaluation & Consult « Events « National Women’s Health Week

Find events in your area « National Women’s Health Week

Health resources « National Women’s Health Week

Interactive screening chart for women « Health resources « National Women’s Health Week

 

CEC Continues to Bring Nursing & Professional Education to the Forefront

Image Copyright © OUBOCESNY.

As part of our ongoing professional education efforts, the CEC was extremely pleased to most recently expand our Nursing Education Lecture Series to the NY State Board of Cooperative Education’s Nursing I classes. 

Endometriosis Pathophysiology, Diagnosis & Management: Making a Positive Difference in the Lives of Your Patients” is designed for community, school and clinic nursing professionals, who are on the ‘front lines’ – and as such, are often the first to detect symptoms in the girls and women they treat.  Subsequently, in an effort to assist healthcare students and tomorrow’s professionals to provide optimal care for women and girls with endometriosis, our presentation series reviews timely disease recognition and impact, identifies research priorities, evaluates modern concepts and emphasizes appropriate strategies to optimize patient outcome.

We are very thankful to the schools, administrators and educators who work with us to bring timely disease education to their local communities, so that the next generation of professionals will be able to facilitate quality of care and manage treatments effectively to improve quality of life, reduce pain, and prevent further progression of disease in their own critical community-based work.

If you would like the CEC to present to students or professionals in your area, please contact us.

Finding her Voice: Kathryn’s Letter

Acute pain in a woman stomachFrom the author: I would like to share a very personal story. I dated a guy who is now two weeks away from becoming a doctor. Below is the email I just sent him. I had undiagnosed endometriosis and chronic BV and yeast infections, however my boyfriend thought I had somatization disorder. I changed the names, minus the name of my wonderful gynecologist. I would like to share my story with women and doctors alike to raise awareness about how the sexism prevalent in today’s medical and social society prevent women with endometriosis from being diagnosed. 

Readers may also be interested in this feature article by CEC’s Founder, Robert B. Albee, Jr., MD.  Thank you to Kathryn for allowing us to share her poignant words.

By Kathryn Williams

Bryan,

I had an interesting conversation with a close friend today who was a psychology major. Also, a few weeks ago, my allergist, who loves to talk, told me the reason he became an allergist was because his mother had horrible food allergies, but nobody believed her until she went into shock. He told me a big problem with the medical society is that many male doctors falsely assume women-particularly *young* women-make up their problems. My allergist said that what appeals to him most about his career is that the majority of his patients are women, because women are more allergy prone, and he is often the only one who believes them.

It got me to thinking… it is really messed up that you suggested I had somatization disorder a while ago. Your whole attitude about that showed, too. After talking to my friend, I looked up the disorder online. I originally only knew the basic definition from an undergrad psychology course. Sounds a lot like endometriosis, considering symptoms involve the nerves, bowels and reproductive system. An arrogant, sexist male likely came up with that disorder as a way to subordinate women in pain.

AFTER most times we had sex, I was in severe pain and had sciatica for two days straight. I had to take narcotics and was sometimes bedridden. I also sometimes got raging BV and yeast. I had to go to physical therapy twice a week; one reason why I never had any money. Two weeks after surgery, after we had sex, I was in so much pain that I no longer wanted to live, although I didn’t say anything to anybody. I had times where I couldn’t do any physical exercise, because I would pee myself, and sex just made that so much worse.

But after all that I secretly went through, you suggested I had somatization disorder.

I was raised in a culture where we don’t talk health stuff, particularly vaginas, pee and pelvises. Also, I never want to make anyone feel guilty. Well, you know what, such a notion is ridiculous because it is the precise reason so many women are in my position. I am telling you EXACTLY how it is, with the hope that maybe this will turn around and help somebody.

You are so sweet and kind in many ways, but you definitely have some arrogant, sexist beliefs. You told me the first time I met you that you thought young women overreacted about things. Secretly that frustrated me, as I went to a very feminist college.

Your brief but succinct suggestion of somatization disorder has at times, internally, enraged me to no avail. It was psychologically damaging that in the course of 5 years I saw over 15 doctors before I got diagnosed. One reason it took me so long to get diagnosed was due to sexist male doctors. Kamal Hamod, MD, an open minded MALE doctor, was a godsend! After all of that, it was ALSO psychologically damaging that I had to endure so much pain after we had intercourse, ONLY FOR YOU TO SUGGEST AND BELIEVE I HAD SOMATIZATION DISORDER.

People who quickly presume women with multiple complaints have somatization disorder should NOT BE DOCTORS. Those who assume they are always right should not be doctors. Even Lawrence, the doctor above you, stated the latter about you. Know-it-alls will automatically come to the conclusion of somatization disorder, if they can’t figure something out, so they can still feel intelligent.

Doctors who always think they are right and automatically think young women with multiple complaints have somatization disorder will ruin someone’s life. You ARE very intelligent, but that doesn’t matter in many instances, for you are closed minded. You put women into these generalizations you read in your text books without looking at them like a real person.

P.S.- You really only see people as the generalizations in your textbook. I ALSO got MAD when you said most people with cancer work full time. My brother, old coworker, and my favorite professor had cancer. Some people with cancer DO work full time, but their ability to do so depends on many factors. If my brother were old enough to work, he most certainly would not have been able. My coworker and old professor could not work full time. Also, my aunt who has sundry autoimmune diseases can’t work full time either. I work almost full time, and it’s hard when you have pain!

My personal observation, based on the cancer comment, is that you do not try to figure out what the lives of your patients are like outside of the very dry textbook symptoms, yet you act like you are an expert.

Endometriosis & CEC Featured on ‘The Balancing Act’® on the Lifetime Television® Network

The CEC was delighted to be featured on ‘The Balancing Act®’, which aired on the Lifetime Television® network in early April 2013. Alongside leading industry pioneers, OmniGuide Surgical, and Reproductive Endocrinologists Dr. Charles Miller and Dr. Millie Behera, the CEC team was able to help bring disease awareness and education to the network’s 98 million subscribers. [click to learn more]

Have your Voice Heard: Participate in a Research Study

butterflyTo volunteer for an important research study about the social effects of endometriosis on women’s lives and endometriosis patient care being conducted by Dr. Jennifer Pemberton, please click the following link and submit your responses directly to the Study Coordinator: https://endo-research.com:8443/EndoResearch

Is endometriosis all in your head?

Robert Albee, MDCEC Founder Robert B. Albee, Jr., MD shares a critical opinion piece on the psychological impact of undiagnosed endometriosis on young women. Visit endometriosis.org to read the full article:  http://endometriosis.org/news/opinion/albee-is-endometriosis-all-in-your-head

FAQ: Becoming a CEC Patient

TulipsHow does the process of becoming a CEC patient work?  Here we’ve compiled some answers to our most frequently asked questions to get you started. As always, don’t hesitate to contact us anytime at Heather@CenterForEndo.com if you need further information or have any additional questions.

Frequently Asked Questions
Are you considering the CEC for treatment, but have general questions?  We have a lot of information on our practice website at http://www.centerforendo.com; however, here are some FAQs to get you started!

Are you accepting new patients? Does the CEC accept patients from outside of Atlanta, GA?

Yes, and yes!  In fact, our patients have come to us from more than 40 countries all over the world – all of North America, the UK, Brazil, Japan, Australia, Iceland, Egypt, Africa, New Zealand and beyond.  If you are dealing with endometriosis – or think you might be – we would be honored to try and help you restore your quality of life through our compassionate, expert treatment. Dr. Albee is not accepting new surgical cases; however, Dr. Sinervo, our Medical Director, operates four days a week and will be very happy to work with you on your case.

Do you offer phone consults or records review?

Yes, absolutely! Our records review and case consult is FREE.  The records review process is outlined here: http://centerforendo.com/sendingyourrecords.htm. Please read through it before submitting any case files.  We are among the few excision centers in the country that still offer free reviews, as we have for the past 25 yrs.

I’m going to just send off my records to the Center right now. Is that okay?

NO!  Please register first. Unsolicited files will be destroyed. We MUST have registration data for you before we can review and monitor your case.  Please see http://centerforendo.com/sendinfo.htm for details.  Thank you for understanding our need to adhere to a specific process in order to best serve your needs and protect your healthcare information.

How much does LAPEX surgery cost?

Please note we are unable to determine your specific fee prior to reviewing your case. Each woman and girl’s situation is unique and thus is handled on private basis with CEC Surgical Coordinator,  Jean Williams.  Please know we strive very hard to make it a possibility for all patients to receive care with us to the extent we can, and thus fees will only be determined based on the specific patient’s review, her recommended procedures, her personal financial situation and insurance details.  For information on how we work with insurance, visit our article: Understanding Insurance as it Relates to your Care & Treatment at the CEC. There is no average “ballpark” figure which we can accurately offer you in advance, as out of pocket maximums will be based on the patient and her needs/case.  All patients work with Jean individually after their initial consult with Dr. Sinervo and a surgical contract – including exact fees – is then established before scheduling any procedures and coming to Atlanta. Credit cards are accepted and we can certainly explore payment plans and potential discounts on a case by case basis. Thank you for understanding.

I heard the CEC doesn’t accept insurance. Is this true?

No. We are out of network providers.  That means, you may be eligible for out-of-network coverage for your surgery with us.  We will help file and check your insurance, etc.  As noted above, you may wish to read this comprehensive article located at http://centerforendo.com/insurance.htm to understand more.  More importantly, please know – we strive to make it a possibility for every patient to come to our Center for treatment and will work with each patient individually based on her needs.  Please do not base your decision to seek possible care with us on someone else’s costs and personal situation, which you may have read about on the internet or Facebook. Each case is handled differently according to the woman or girl’s individual needs.

Do I have to make multiple trips to your office before actually having surgery?

No. We know this is an inconvenience for the majority of our patients.  While you are always welcome to come to the office, it is not a requirement to schedule surgery. We recognize the significant burden it places on women and their families both in terms of time and expense; thus, we do as much as possible upfront via email, postal mail, fax and phone prior to actually requiring you to come in. Northside Hospital, where our operating room is, approaches our patient’s cases the same way and will do as much as they can before you arrive in Atlanta as well. The same is true for our collaborating team members.

How long will I need to stay in Atlanta if I come for surgery?

Every case varies, but the average stay is approximately 1 week. Arrive in Atlanta, pre-op in our offices the next day, surgery the day after that, recuperation in your hotel or lodging for a couple more days, and then return home to fully recuperate (this is a simplistic approximation; you will be provided more specifics about your own case at the time of booking). Check our website for area hotels and remember to ask for medical discount rates when booking.

How many days will I be hospitalized after my surgery?

Again, this varies based on the individual, but in general, our surgeries (with the exception of bowel resection, hysterectomy or other major component to your surgery) typically require only a 23 hour hold – this is considered *outpatient*. An overnight stay allows us to treat your post-op pain and observe you before sending you home in the morning. All procedures are done laparoscopically, but should you have a bowel resection, for example, you will be held longer; approximately 72 hours.  Again, these are general averages – each case is unique.

Is it okay for me to be driven home after surgery? It’s a 2/4/6/8/etc. hour drive.

Yes, you can be driven home once you are released, but remember: you will be in pain and we strongly suggest you to stop every 1.5-2 hrs to stretch your legs, use the facilities, etc. For travel tips post-operatively, see our website at http://centerforendo.com/goingthedistance.htm and http://centerforendo.com/traveling.htm. If your ride is more than a couple hours, you may wish to postpone the drive home or consider other options.

What blood work will I need prior to surgery?

Unless you are specifically directed otherwise by Dr. Sinervo with regards to your own case, we merely perform a finger stick at your pre-op. Northside Hospital will advise you in your pre-op phone consult if there is anything they require.

I have religious restrictions (i.e. Refusal of Transfusion) which I want honored during surgery.  Is this a problem?

Not at all. We gladly honor, respect and uphold your wishes and beliefs accordingly.  We have had many patients from diverse religious backgrounds and honor their needs accordingly.

I need a babysitter/car service/religious organization/grocery store/other resource while in Atlanta. Can you help?

We will try to assist you as much as we possibly can with your various needs while in the Atlanta area.  However, please understand that we are a medical practice and thus may have limited knowledge of such services.  Do let us know what you are looking in advance of your trip to Georgia, though, and we will try to accommodate you if we can.

I don’t have bowel disease, so do I still need to bowel prep?

Only if you want the surgery.  smile  Yes, CEC requires all patients to prep. Sorry, folks!  Our prep typically involves an enema/oral laxative combination, but this will be addressed with personally at the time of your booking. For helpful prep tips, please visit: http://endometriosis.org/resources/articles/how-to-survive-a-bowel-preparation

Will I need pads or tampons after surgery?

Panty liners for a few days following surgery are expected; discuss the specific needs/expectations of your case with your surgeon.

Does Northside Hospital have private rooms?

Yes, all rooms with the exception of the post-op holding and recovery bay are private.

Can my partner/spouse/family member stay with me overnight?

Visitors can see you all day until approximately 9pm or so; partners/loved ones may be able to spend the night with you chair-side – check with your nurse. For policy regarding children, see http://www.Northside.com.

Do I need to make a follow-up appointment after surgery?

If your desire is to come in and see your surgeon before you leave Atlanta, you are certainly welcome and encouraged to do so. However, it is not required to be discharged, as your surgeon will be seeing you in the hospital prior to your release.

What if I have issues after surgery?

You need to call us and notify us as soon as possible.  We cannot stress the following enough: *Email/posting on Facebook or internet boards/etc. are not effective means of communication regarding your personal healthcare* and you MUST *speak* with a medical team member as soon as your symptoms present following surgery by calling the office and triaging with our nurses.  Our phone # is 770.913.0001.  We cannot action cases we do not know about or that are publicly posted on social media (for us to do so would violate your privacy protection under the law), so please contact us.

Can the CEC help me complete my FMLA and/or Disability paperwork?

Yes. There is a nominal fee of $35.00 payable to the Center for Endometriosis Care/Robert B. Albee, Jr. MD & Associates, LLC for our assistance with and completion of all Family Medical Leave Act and/or Disability paperwork.  Should you have any questions, please don’t hesitate to ask.  Trish, Beth or Jean would be very happy to assist you by calling 770.913.0001 for questions regarding this specific matter.

How long has the CEC been in business?

CEC was formed by Robert B. Albee, Jr., MD over two decades ago around four guiding principles to assist those with (or who think they may have) endometriosis and pelvic pain. It is led today by Medical Director, Ken Sinervo, MD.  We adhere to the following strict ethics:

- Recognizing subtle disease in all its manifestations;
- Removing all endometriosis while preserving a woman or girl’s organs;
- Performing pathological examination on all excised tissue; and
- Treating our patients with respect and compassion as partners in their health care.

Why is endometriosis so difficult to treat effectively?

Often misdiagnosed and ineffectively treated, symptoms of endometriosis often chronically persist because it is rarely treated through the laparoscopic excision – LAPEX – procedure we have been performing here for decades across thousands upon thousands of women and girls. Such incomplete treatment results from even well-meaning physicians who do not recognize the disease or remove it in its entirety, leaving deep endometriosis – along with painful symptoms and pathology – behind. Most patients who come to us from every corner of the globe have received prior, failed therapies.  Suppressive medications and hysterectomy (and even in this day and age still, “pregnancy as a cure”) are often recommended as treatments or cures, which of course they are not. We believe the key to success is removing *disease*, not *healthy organs*. You can learn more about excision and endometriosis here.

True recurrence is actually low if all disease is thoroughly and meticulously excised from all locations. Through our LAPEX approach, women and girls of all ages – at all stages of disease – have an excellent chance of being pain-free for the long-term, with minimal chance of recurrent or persistent symptoms. We have now treated to date over 4,000 patients at our Center, exclusively through meticulous and painstaking laparoscopic excision, for more than 20 years. We have excellent long-term success rates among women and girls of all ages.

All laser surgery is created equal, right?

Wrong.  Our surgeons are global leaders in the treatment of endometriosis and are among a mere handful of surgeons in the world who have perfected the C02 excision technique. Dr. Albee and Dr. Sinervo have long used the C02 laser to *dissect* the disease – this differs significantly from other, less meticulous surgical/laser techniques like vaporization and electrocautery/fulguration, or coagulation; all of which destroy the tissue, making microscopic evaluation impossible and do not remove all endometriosis – that’s why we don’t use those approaches. CEC surgeons use the laser as a *precision cutting tool*, NOT as a means of tissue destruction – vastly different from laser vaporization, etc.  There is a very big, fundamental difference.

Endometriosis of the bowel, bladder and beyond can also be safely and completely removed with the laser through excision, as can dense adhesions and deep, infiltrating peritoneal disease. All excised tissue is sent to the pathology lab for examination. You have the security of knowing exactly what was found and removed in your surgery.

The tool is not as important as the skill of the surgeon. Excision can be performed using cold excision, laser, robot or other means; what is not as important as how. If a surgeon cannot excise, they cannot excise using any tool.

 

I want to get directions. Where are you located?

The Center for Endometriosis Care | Perimeter Town Center
1140 Hammond Drive | Building F, Suite 6220
Atlanta, GA 30328 USA
Toll Free: 866.733.5540 | Outside U.S.: 770.913.0001 | Fax: 770.913.0005
Web: http://www.centerforendo.com | http://www.centerforendometriosiscare.com
Facebook: centerforendometriosiscare | Twitter: @CtrForEndoCare
Pinterest: http://pinterest.com/ctrforendocare | http://centerforendo.com/traveling.htm

Where can I check your references?

Start here for links to various, unbiased testimonial websites and our references: http://centerforendo.com/references.htm.  You can also just Google us or check with various internet support groups such as this one.

I still have questions.  What should I do?

Call or write us anytime! The best place to get answers is directly from the CEC. We’re looking forward to hearing from you and want to help you however we can!

Endometriosis? What’s the Big Deal? It’s just “Killer Cramps,” Right?’ Wrong.

Acute painEndometriosis? What’s the big deal? It’s just “Killer Cramps,” right?

Wrong.

This misnomer diminishes and invalidates the suffering of every woman and girl with the disease and often leads to further isolation.

Endometriosis is, in fact, a wound so profound and primal in nature it has the potential to pervade and negatively impact every aspect of a woman or girl’s entire life – and the life of those who care for her; from her ability to go about her normal routine, to intimate engagement in a healthy and pleasurable sex life with her partner, to the ability to control her reproductive choices.  Symptoms may arise at any point in a woman or girl’s cycle – and may be continual and unrelenting – ranging from pelvic pain to bowel and bladder dysfunction.

Endometriosis is more than a disease of infertility or ‘painful periods’; it is a complex, confusing disorder requiring multidisciplinary expertise. Fortunately, endometriosis is not hopeless and quality treatments do exist. However, until society – both medical and lay – begins acknowledging the disease as a priority public health issue, the movement to connect women and girls to quality care will continue to face needless barriers and delays. “The time to stop treating the disease like some so-called ‘neglected stepchild’ of the global ob-gyn community is long overdue.”-Heather Guidone, Surgical Program Director, Center for Endometriosis Care

 

Please note: the quote contained above has been updated upon reviewing a request to do so from a visitor who took offense to the original colloquialism previously used. Please understand that the quote does not refer to any actual persons, but rather, to the way in which endometriosis is regarded amongst the medical community at large. Thank you for your understanding.